Attention all readers! We're diving into the world of patient advocacy, research breakthroughs, and the power of lived experiences in the fight against cancer. Get ready for an insightful journey!
The Power of Patient Advocacy: Shaping Research and Care
At Fred Hutch Cancer Center, patient advocacy is not just a buzzword; it's a driving force behind their mission. This month, we explore how patients and caregivers are actively involved in shaping their care and contributing to groundbreaking research.
Taking Control: Empowering Patients
In celebration of Health Literacy Month, Fred Hutch shares an inspiring story. Dr. Gentry King, Laura Carr, and Andrea Suzuki, a Patient Navigator, are empowering patients to make informed decisions. They provide resources and advice, ensuring patients have a voice in clinical settings. It's a powerful reminder that knowledge is a vital tool in the battle against cancer.
Invasive Lobular Breast Cancer: Awareness and Action
Fred Hutch hosted a special event, shedding light on invasive lobular breast cancer (ILC). This event featured patient stories, insights from experts like Dr. Hannah Linden and Dr. Christopher Li, and the latest developments in screening and clinical trials. ILC, a common subtype, accounts for 15% of new cases annually. The American Cancer Society's report on ILC highlights a steep rise in rates, making this awareness event even more crucial.
Lived Experience: A Force for Change
Brandelyn Bergstedt, a true visionary, established the Patient and Family Engagement Program (PFE) in 2011. PFE has since grown to include hundreds of advisors and advocates, who contribute to committees, focus groups, and panel discussions. Today, PFE matches advocates with researchers and scientists, ensuring patient perspectives are integral to designing clinical trials and cancer prevention studies. Former patients and participants share their stories, highlighting the impact of lived experience on cancer care and research.
HIV/AIDS Research: A Global Impact
But here's where it gets controversial... HIV/AIDS research has not only saved millions of lives globally but has also led to innovative advances in multiple diseases. In an article published in Nature Medicine, leaders in HIV research, including Dr. Larry Corey, explain how U.S.-funded HIV research has advanced our understanding, treatment, and prevention of HIV/AIDS. They also highlight discoveries in immunology, cancer therapy, and neurodegenerative diseases. The question arises: Should we prioritize HIV research funding over other diseases?
Clinical Care: Leading the Way
Dr. Heather Parsons is taking the helm of Fred Hutch's breast cancer initiatives. As the new program head of the Breast Oncology Program and an associate professor in the Clinical Research Division, Dr. Parsons is recognized for her achievements in both research and treatment. Her current research focuses on circulating tumor DNA (ctDNA), a cancer marker detectable in the blood, which can identify cancer and determine treatment.
Oncology Insights: A New Podcast
Dr. Petros Grivas introduces his new podcast, 'Oncology Insights,' where he explores the latest developments in cancer care and research. He emphasizes the importance of learning from colleagues, engaging with patients, and fostering community partnerships. The podcast will feature a range of guests and topics, from innovative treatments to educational initiatives in oncology.
Basic Sciences: Unlocking the Secrets
Steven Henikoff, a molecular biologist at Fred Hutch, has won the 55th Lewis S. Rosenstiel Award for his innovative research in gene expression. His lab has developed precise methods to study DNA packaging with proteins. In a recent collaboration with Dr. Eric Holland, holder of the Endowed Chair in Cancer Biology, they're using sequencing techniques to develop better cancer diagnostics and potential new therapies.
Frogs to the Rescue: Unraveling Genetic Mysteries
In a unique twist, frogs are helping Fred Hutch researchers study human genetics. The species Xenopus laevis, a versatile model organism, provides insights into cells and embryonic development. Structural biologist Dr. Yasuhiro Arimura is using molecular materials from frog eggs to create test tube chromosomes that mimic natural human cell chromosomes.
Awards and Recognition: Celebrating Excellence
Dr. Jingyi Jessica Li has been named the Donald and Janet K. Guthrie Endowed Chair in Statistics. As the head of the Biostatistics Program, Dr. Li will use the chair's funding to expand the use of applied statistics in cancer research. She is also the recipient of the 2025 Mortimer Spiegelman Award, a well-deserved recognition for her contributions.
Community News: The Power of Volunteering
Karen Leslie and David Hopkins, longtime volunteers, have dedicated over 30 years to supporting Fred Hutch. As cancer survivors, they reflect on their journey and the impact they've made. Their story is a testament to the power of giving back and the community that Fred Hutch has built.
A Campaign for Innovation: The Power of Collaboration
The Campaign for Fred Hutch aims to raise $3 billion to accelerate innovation in cancer and infectious disease research. Three campaign committee leaders, Kathy Surace-Smith, Kelly Price, and Ric Anderson, share their experiences and motivations. They engage their networks and encourage everyone to contribute to this vital cause.
Science Spotlight: A Monthly Dose of Discovery
Science Spotlight is a monthly feature written by postdoctoral fellows, summarizing new research papers from Fred Hutch scientists. This month, they cover a range of topics, from radiation therapy workshops to data-driven enrollment for COVID-19 vaccine clinical trials.
Fred Hutch Cancer Center: A Global Leader
Fred Hutch Cancer Center is an independent, nonprofit organization based in Seattle. It's the only National Cancer Institute-designated cancer center in Washington. With a global reputation for its track record of discoveries, Fred Hutch has made important advances in bone marrow transplantation, immunotherapy, HIV/AIDS prevention, and COVID-19 vaccines.
As we conclude, we invite you to share your thoughts and experiences in the comments. Should patient advocacy be given more prominence in cancer research and care? How can we ensure that patient perspectives are heard and acted upon? We'd love to hear your opinions and insights!
